Every Patient, Every Rare Disease. The ClinEdge Rare Disease program utilizes defined methods to compassionately engage, partner, and empower rare disease patients and their families. Our global strategies improve the clinical trial process by using the voice of the patient to build and support clinical trial programs, using their own journey and story to increase patient engagement and retention.
Recruitment & Retention for Rare Diseases
Through a highly collaborative process, the ClinEdge Rare Disease mission is to advance the care, accessibility and awareness of clinical trials for rare disease communities.
Social Listening
Patient & Caregiver Profiling
Trial Feasibility
Content Strategy and Development
Digital Advertising
Social Media Engagement
Referral Management & Analytics
Database of Patients & Caregivers
1.LISTEN & LEARN
When Sponsors gain insights to a patient’s journey, it lays the foundation for a patient-centric campaign. ClinEdge assists with patient and caregiver profiling, support group partnering and social listening.
2.DEVELOP & CULTIVATE
Using these insights, ClinEdge supports Sponsors through protocol development and implementation of personalized recruitment tactics to allow for increased education and exposure of the study.
3.CONTINUE ENGAGEMENT
Patient engagement is attributed to specific tactics and technology to encourage commitment throughout the entire study duration. ClinEdge offers a patient education hotline and travel coordination support through our Patient Navigators.
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My position is most rewarding when sites are awarded competitive clinical trials in high interest indications. This not only helps their business to grow, but also continues to progress the future developments of clinical therapies.
