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Rare Disease

Recruitment & Retention for Rare Disease Trials

Recruitment & Retention for Rare Diseases

Through a highly collaborative process, The ClinEdge Rare Disease mission is to advance the care, accessibility and awareness of clinical trials for rare disease communities.

Agency Services Created with the Real Rare Disease Experts: The Patients

The ClinEdge Rare Disease program utilizes defined methods to compassionately engage, partner, and empower rare disease patients and their families. Our global strategies improve the clinical trial process by using the voice of the patient to build and support clinical trial programs, using their own journey and story to increase patient engagement and retention.

Our unique three-phased approach

LISTEN & LEARN

  • Social Listening
  • Patient & Caregiver Profiling
  • Patient Experience Mapping
  • Patient Surveying
  • Trial Feasibility Assessment

DEVELOP & CULTIVATE

  • Content Strategy and Development
  • Clinical Trial Website Development
  • Patient Pre-screening Tools
  • Digital Advertising
  • Online Community Building
  • Social Media Engagement
  • Public Relations Strategy
  • Patient & Site Material Creation
  • Support Group Partnering

CONTINUE ENGAGEMENT

  • Site Communication
  • Referral Management & Analytics
  • Patient & Caregiver Education and Support
  • Full Service Travel Concierge Program
  • Site Relations Management
  • On-site Clinical Staffing Support
  • Global Site Network of over 450 locations
  • Database of Patients & Caregivers

 

Learn more about what we can do for your Rare Disease Trial!

Too busy to shoot us an email? Let us email you instead!​

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